Riley is fighting a severe and very rare neurological disease called AHC.
A cure is in reach. We can help her fight back.
What would you do if your child were diagnosed with a devastating disease with no cure, no effective treatment, and minimal funding for research? This is our reality.
There is hope, however. The path to a cure for Riley, and for countless other children suffering from genetic disorders, is gene therapy.
Riley
Learn about Riley
On her good days, she is full of smiles and laughs and is a curious, funny, and determined little baby. On her bad days, when she is having an AHC episode, our entire world comes crashing down.
AHC
Learn about AHC
Riley becomes temporarily paralyzed, cannot eat or drink, and cannot play with her toys. She deals with involuntary, painful, and irregular eye movements and muscle contractions She is in an immense amount of pain that no adult should ever have to deal with, let alone a little girl.
AHC
Donate to AHC
Currently, there is no cure for AHC. Because AHC is so rare, pharmaceutical companies don’t spend money to find a cure, BUT the parents of kiddos with this disease have come together to try and find ways and raise money to find a cure. A cure is within reach, but a lack of money is in the way.
Volunteer
Volunteer with the Foundation
Click the button below to learn more about volunteer opportunities with the Cure AHC organization.
A Rescue For Riley 